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Title:Test : Living in the Shadow of Huntington's Disease
Author:Jean Baréma
ISBN:1879957574 : 9781879957572
Format:Paperback
Size:150x210mm
Pages:160
Weight: .25 Kg.
Published:Midpoint Trade Books (Franklin Square Press) - October 2005
List Price: 9.5 Pounds Sterling
Availability:In Print
Subjects:Biography & autobiography: science, tech & eng: MEDICINE


A memoir of the five years Barema spent in anguish over the decision to take the test for Huntington's disease. Barema recalls his long, emotionally wrought journey from deciding to take the test to receiving the results; he describes how his daily life was consumed by questions and fear; and he movingly depicts the patience of his wife and the compassion of his doctor. This is both a suspense story and a vivid portrayal of the devastation Huntington's disease causes the families it strikes. Ultimately, it is a book about the power of hope and love to reach us even in our lowest moments.